To the Edge and Back: A family's journey through rare disease

                                       Epilepsy has been a very big part of our lives since we were blessed with Sage. Epilepsy affects each person and family differently. There are numerous disorders that encompass epilepsy that all come with their own unique struggles. For us, we noticed “strange movements” from the time Sage was 6 weeks old, but she wasn’t officially diagnosed with Epilepsy until the day after she turned 4 months old. (Writing that down right now, just feels crazy…She was so little!)  Sage’s first diagnosis, our first step into the world we are now all too familiar with, was Epilepsy. It was a term I understood, and it was terrifying. I have a cousin with a daughter who also had seizures at a young age, and I reached out to her about what she went through. It was encouraging to know that there are others going through something similar, but still very overwhelming to think of all that I now needed to worry about for my child. She did give me