To the Edge and Back: A family's journey through rare disease

Diagnosis Journey: Part 1-Epilepsy    We were ecstatic when we found out we were pregnant, and even more excited with we found out we were having another little baby girl. Our lives before Sage were pretty normal. We had a toddler who was just as busy as any other, Brandon was working full time and I was lucky enough to be able to stay at home with Clover.   I guess you could say that Sage is our COVID baby because we found out we were pregnant with her right after we had COVID. In hindsight, I even had a feeling throughout my pregnancy that something was different this time around but shrugged it off as just a different pregnancy. I didn’t have many complications besides being diagnosed with Preeclampsia the day I had her. I had Clover by emergency c-section and decided to do a repeat c-section with Sage as well to avoid all the possible risks of a VBAC.   Earlier in the week I was feeling weird, so I took my blood pressure at Walmart, and it was pretty high...

Welcome to our blog , To the Edge and Back: A Family’s Journey Through Rare Disease . My hope in starting this blog is to reach those who may be going through something hard in their lives and give them hope of better days ahead and ways to find joy in their journey. We have been in the world of Rare Disease for 2 years and I have been pretty open about our struggles and successes on my daughter’s Facebook page @oursweetsagemarie but decided to make a more accessible place so that our experiences may reach a new and broader audience.   I am Catherine, mom to two beautiful and unique girls: Clover and Sage. I am the wife of a very hard-working man, Brandon. Brandon and I have been married for almost 9 years. After moving from Utah to a small town in Idaho, Clover was born and is now 4.5 years old. Clover is a spunky, talkative, kind and smart girl who has a unique love of life that is contagious. Two years later, Sage, our sweet "Forever Baby" was born.  When Sage was ju...